by Sharron Warren

Archive for June, 2015

CHANGES ARE HAPPENING

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I know to be careful in what you wish for………I got my wish!! Hot weather – pool – new neighbor friends and lazy days. I’ve also had a few great days and sleep-over’s with the grandkids. Did I say lazy??? I’ve not been exercising my brain but I feel at peace and that has to count for slipping a little. I am like a child by the time we get to the pool. I bring things to read, as you know just magazines, but I’m in the water ALL THE TIME. I am so happy there. Exercising my leg in the pool is a good reason to get water logged! Right? Monthly socials are fun…the last one was the 50’s

People with Alzheimer’s come in all ages and stages. These 7 stages which I’ve mention before in my BLOG vary so much. No one wants to put themselves in a stage but while it’s hard to read the info it’s good to know what might come next. It’s also nice for your family or care partner to know. Like most things we may not be in just one certain stage. I find myself in one stage with parts of a later stage rearing its ugly head.

http://www.alzheimers.net/stages-of-alzheimers-disease/

To say that summer is here and all is well is wonderful. Yes, I feel better looking out my sunroom window and seeing my plants, birds and the sun. But the truth is that my Alzheimer’s is always on my mind – and in my brain – humor helps. If you are a care partner or giver and are living with someone like me you need to know that my moods can snap in a second. I get angry when I fail at something. I get angry because I know what’s happening and I can not do a thing to stop it. I weep as Tom holds me. As I cry I hope the people who know me will remember me the way I am now. I feel we all want this. I’ve been able to remember the good times with my Mom and I hope to never lose that – but I will. There are so many questions I want to ask at my next support meeting. We are all in so many places. Sharing information is helpful and funny.

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As you know I have a marvelous broken leg (this is the stage I fell of) which is healing nicely but is still very painful so that messes with my brain. No one should have Alzheimer’s and a broken leg. What is nice about the broken leg is that it will heal. I will be able to walk well again, I have medications for the pain………wouldn’t it be wonderful if life was that way for Alzheimer’s?

Read this and close your eyes:
Imagine the sky is covered with purple, purple balloons, purple cotton balls and that to all of the purple is just a color. Purple means nothing but a beautiful color in the sky……….there is no Alzheimer’s therefore purple is just a color. I do this several times a day. I also wish pink was just pink and puzzle pieces (for Asperger’s) were something to play with.

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I know many people baulk at joining face book but it has a wealth of information. You can join and look for sites that you find interesting. You do not have to be friends with anyone. You Like the page you are interested in and that’s the only information you will receive. Here are a few sites.

1. Alzheimer’s Association – Southeastern Virginia
2. MindCare
3. Walk to end Alzheimer’s – Williamsburg

This month has been wonderful with the weather, pool and new friends but here is a list of my declines. I’ve not had any declines in over a year. As they say “When it rains it pours”.

1. Difficulty with speech – a mouthful of jumbled works or sounds – mostly when I’m tired.
2. Problems finishing a sentence.
3. Increase in talking to myself – no, unless you have Alzheimer’s you do not talk to yourself like I do.
4. A increase in repeating stories with wrong information.
5. Increase in forgetting names. I HATE THAT! Thank you Tom for being there for me and filling in the blanks.

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Many people ask me how long a person survives with Alzheimer’s. Statistics was used for this model but so many people vary so I take this with a grain of salt because I plan to be around a long time. I want to remember all these sweet people for along time.

The three stage Alzheimer’s disease model

Stage 1 – Mild/Early (lasts 2-4 yrs) – Frequent recent memory loss, particularly of recent conversations and events. …

Stage 2 – Moderate/Middle (lasts 2-10 yrs) – Can no longer cover up problems. …

Stage 3 – Severe/Late (lasts 1-3+ yrs) – Confused about past and present.

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I will be sending out information for the October 24th Alzheimer’s walk in the next week – if I can remember!!. Filling out a form to be a walker does not obligate you for a thing, except maybe you will walk with us. Boosting up team members is #1, having fun is #2, raising donations & the car raffle is #3. Last year I set a goal of $1,000 and we went over $3,000. Donation and raffle tickets go to our team total! Please feel free to spread the news; especially about the car………..if you don’t play you can’t win!! If you want to make a donation please wait until I send out the information. GO VILLAS!

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I am seeking items to raffle off just for the Villas residents – such as a Martin’s gift card, fruit basket etc. If you have any connections with local businesses please let me know.

“Always be kinder than you feel”

As writing gets harder for me please laugh at the misspelling – spell check isn’t always the answer! Please laugh at my grammar but most of all please share my BLOG with friends and family. Have them go to the bottom of the page and hit FOLLOW. It will ask for you email and you will get a notice when I have updated the BLOG. Usually once a month. Alzheimer’s will touch all of us ALL OF US.

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Last note! I was asked by our Alzheimer’s CEO, Gino V. Colombara to do a radio interview with him to bring awareness of this horrible disease. I am always honored when I am asked to speak.

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SUMMERTIME AND LIFE IS EASY – SMALL ADDITION

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Time change for the radio interview with me and Gino Colombara the CEO of the Alzheimer’s Association of Southeastern Virginia will be this Sat. the 6th and Sat. the 20th at 9AM and not 8AM. I hope you get to listen and remember you can log in from any State.

wmbgradio.com

Thank you and RAIN RAIN GO AWAY!!!

SUMMERTIME AND LIFE IS EASY

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I know this is late and it will be short and I only have me to blame. I have gotten lazy – too many days of just laying around doing exercises with some horrid PT thrown in equals pain medication, ice bags and MORE laying around. I find myself asking when this cycle will end. Will the pain really go away? (maybe in a year or two) Will I ever walk without pain? (I can’t really comment on that – just depends) Will I ever be able to empty my dresser of all the new medications? That depends on the other two questions. Being a nurse I know the standard physician lingo but it’s still funny to I ask.

I am going into my 5th month of breaking my leg so I’d like some answers —– but like Alzheimer’s there are no good answers, therefore we get none. To me that’s OK as I’ve learned so much and I know there are no clear and easy answers to this Alzheimer’s thing. But there are so many out there that never gets the diagnoses therefore they don’t get the help they need. I am so fortunate. I am also fortunate enough to know when my brain is not cooperating with my mouth and I can either get angry or I can laugh. Tom has this cute way of looking at me when I’m scrambling for a word so I usually laugh. The anger or the laughing right now depends on my leg. See the circle? One has to go away soon and we all know which one isn’t. I’ll have to work on the leg but I will also continue to work on my brain. I may just be here another 20 years or so. I feel lucky!! Did I just hear Tom saying “Oh No”?

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If you’re like me you’re happy that summer has arrived. There are those that do not like the humidity, sun, beach or pool – I’m in for all of those. Having a pool this year – finally – is wonderful for my spirit and my leg. Both love to float on my supper noodle. I am getting geared up to take the grandkids to Jamestown Beach – one tiny little wonder of Williamsburg – shallow fresh water which means it’s never above my thighs, great for the kiddies, you get to watch the ferry come and go all day and it’s just peaceful. My grandkids have been asking for the past 2 months – I believe Riley was worried that my leg couldn’t go but here I am – WALKING!! Sometimes an awkward walk, sometimes a limp and sometimes a cane but I can get to where I need to go, even the beach. For that I feel blessed. It is amazing to me that one ugly, lopsided, scared leg full of metal and screws can actually WALK. I need good support shoes so there go my cute sandals this year. I even got supper support water shoes. If any female needs or wants some good water shoes just ask me. They are great for rough pools and walking in the bottom of Jamestown Beach!!

Another grand blessing for me is that I can DRIVE short distances. I’ve been around our tiny neighborhood and to the grocery store. I hope after PT today I get cleared to hit the small roads. My driving means I can take myself to PT and relieve my wonderful neighbors of that task.

Life can be so complicated for all of us at times but if you just wait long enough things will turn around. Who thought that 4.5 months ago I’d be walking and driving???

LIFE IS GOOD!!

I’ve been in touch with many of you about this years Alzheimer’s walk and more information will be coming out in August. I so appreciate those who have already given me a YES so my team is growing!! If anyone is interested please email me. slbeach703@hotmail.com. A raffle will be announced in July – I can’t wait to see what it will be. If you bought raffle tickets last year and didn’t win the car just remember that it is a great way to give – all the raffle money went to our local Alzheimer’s Association and who knows – you may win this year.

Another tid-bit. I did a radio interview this week with the CEO of the Alzheimer’s Association of Southeastern Virginia, Gino Colombara. It will air this Saturday June 6th and also on June 20th both at 9AM. Anyone in any state can listen. June is Alzheimer’s and Brain Awareness month. Wear your PURPLE!

wmbgradio.com

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