by Sharron Warren

Archive for May, 2016

The Wheels Keep on Turning

 

blog june 2016 1

Executive function is a set of mental skills that help you get things done. These skills are controlled by an area of the brain called the frontal lobe.  There are days when I believe my frontal lobe has left for the beach.

Executive function helps you:

  • Manage time
  • Pay attention
  • Switch focus
  • Plan and organize
  • Remember details
  • Avoid saying or doing the wrong thing
  • Do things based on your experience

When executive function isn’t working as it should, your behavior is less controlled. This can affect your ability to:

  • Work
  • Do things independently
  • Maintain relationships

 

exectutive function for june blog

 

Types of Executive Function

Executive function can be divided into two groups:

  • Organization: Gathering information and structuring it for evaluation.
  • Regulation: Taking stock of your surroundings and changing behavior in response to it.

More Problems with Executive Function

Some people are just born with weak executive function.  People with depression, or dementia have weaknesses in it.

An injury to the front of the brain, where the frontal lobe is, can harm your ability to stay on task. Damage from Alzheimer’s disease or strokes may also cause problems.

To improve time management:

  • Create checklists and estimate how long each task will take.
  • Break long assignments into chunks, and assign time frames for completing each one.
  • Use calendars to keep track of appointments, vacations, chores, and activities.  OH MY – this is ME.

To better manage space and keep things from getting lost:

  • Have separate work area- not the kitchen or dining table or the bed.
  • Organize the work space.
  • Minimize clutter.
  • Schedule a weekly time to clean and organize the work space.

This works for me as clutter means disorganization and that rattles my brain causing an unpleasant experience.  Just ask Tom.

 

blog june 2016 2

Fatigue

 When you care for someone with mild Dementia/Alzheimer’s disease, you can often see us change from one day to the next.  It’s common to feel overwhelmed!  But if you plan day to day, you can try different ways to help us cope.

For me having Alzheimer’s is like studying for a final examination every minute of every day. Just listening to conversation or doing the laundry can be exhausting for me. Even TV can be overwhelming at times, particularly shows with a lot of noise and motion or intense emotional situations.  I suffer from afternoon fatigue so much that we are learning not to do much in the afternoons except have quiet time.  This time is for my writing, watching TV, knitting or pool time.

 

Fatigue is the leading cause of behavioral issues in dementing illness.  Having an illness like Alzheimer’s disease is stressful and exhausting.  I need to work hard to follow conversations, perform tasks, and simply try to remember what I should be doing.  I think this is why I talk so much in social situations.  I feel if I keep talking and appear social that no one will notice my disease.  I experience significant fatigue even when I appear to be doing little.  One of the most important habits people with dementia need is to develop the ability to take regular breaks.  In this early stage I try to sit and read my magazines or put my feet up and relax in the afternoon. This helps me to have a stable mood and avoid “sundown syndrome” (a.k.a. late day confusion).  My sweet Tom may disagree with this!

Most important to me:

 Developing a Routine. Change creates stress for people with Alzheimer’s, since we have trouble understanding new situations.  I do my best to stick to a daily routine, which is so difficult when you want to travel and be active.  I try to choose activities carefully and to include rest periods – for my brain and my leg.

 

12036631_1146337405394946_594830507466215766_n

Functional Loss, Avoiding Change

Functional loss is the inability to accomplish tasks.  It is the result of deceased “executive function” in the brain.  What this means is that when trying to reach a goal, such as laundering clothes, a normal brain automatically breaks the task into steps that must be done in order to accomplish the task.  In a healthy individual the more we do those tasks, the less thought it takes to do them.  For people with dementia the ability to determine the order of steps needed to be done is lost – especially when the person has to think about the activity.  The more the person has to think about how to do the activity, the more anxious and confused they become.  If you try to coach the person through the activity, the confusion about steps will become worse and people with dementia become frustrated and frightened.  They know they should be able to accomplish the activity.

Planning Activities

People with mild Alzheimer’s still want and need to be social to keep up their stamina, self-esteem and mood.  A local senior center can help with activities like exercise, games, and arts and crafts.  Also consider outings with friends and family, though be sure to plan around the thought that you may need to rest or to leave early.

Controlling Environmental Stimuli.

Some dementias affect the parts of the brain that interpret what our senses learn from the environment.  This means that vision, hearing, taste, touch, and smell are affected. The person still sees, hears, etc. but is progressively unable to interpret the sensory input.  It is somewhat easier to understand if you imagine your eyes as a camera.  They still take the picture but the brain doesn’t necessarily develop the film correctly. This results in decreased depth perception, ability to see moving objects, or not identifying common things.  This is especially true of what is seen on television.

Too much demand

All too often well-meaning family and friends try to “exercise the person’s brain,” asking repeated questions about the date, names of people, and current events.  This can be very upsetting as the person with early dementia is usually aware of their deficits.  Continuously testing a person does not help their memory and can produce anxiety and depression.  Thank goodness – no one does this to me.

 

Organizing the day

Remember to make time for yourself, or include the person with dementia in activities that you enjoy – for example, taking a daily walk.

A person with Alzheimer’s or other progressive dementia will eventually need a caregiver’s assistance to organize the day. Tom is already doing this.  Structured and pleasant activities can often reduce agitation and improve mood.  Planning activities for a person with dementia works best when you continually explore, experiment and adjust.

Before making a plan, consider:

  • The person’s likes, dislikes, strengths, abilities and interests
  • How the person used to structure his or her day
  • What times of day the person functions best
  • Ample time for meals, bathing and dressing
  • Regular times for waking up and going to bed (especially helpful if the person with dementia experiences sleep issues or sundowning)

Make sure to allow for flexibility within your daily routine for spontaneous activities.

As Alzheimer’s disease progresses, the abilities of a person with dementia will change. With creativity, flexibility and problem solving, you’ll be able to adapt your daily routine to support these changes.

To sum it up, the best way to plan for care for someone with early Alzheimer’s is to organize a consistent routine, with generous activities in an environment with moderate noise and people and at least two rest periods per day.  As your person’s dementia advances the above recommendations can be tweaked or intensified to continue providing care in the moderate stages.

So Sharron, how are you doing?

 TV does not hold my interest – too loud or too much action.

My mood swings faster than you can snap your fingers.

Things I have difficulty with now has a name – executive function but some days I feel like I have ADHD.

I function better in the morning than afternoon – I just wish I could nap.

I am handing off more of my day-to-day functions to Tom.

I love the new monthly Memory Café for Dementia/Alzheimer’s folks in Williamsburg and their care partners.  It is very casual and gives me time to catch up, gossip, laugh and cry – thank you Ladies for doing this.

May has been a sad month as a dear friend of mine lost her Mother to dementia and a few weeks later her brother died unexpectedly.  Tom’s Aunt Anne passed away in the middle of May.  I’ve been doing a lot more praying.

On a good note our Granddaughter, Lexi, graduated from ODU – what a proud day.

Our house is for sale and while I try not to get stressed out it just happens.  We want to move to an area that is more transportation friendly for Tom.  His independence is very important to me.

I lost my love for peanut butter and all foods taste salty.  I used to LOVE both.

 

13244705_10207691728465417_1547925571272037205_n

 

The 2016 Williamsburg Walk to End Alzheimer’s®  is on Oct 22 at Matthew Whaley Elementary School. This will be my 3rd walk.

In 2015 our chapter (Southeastern Virginia) raised over $735,000 through 6 chapter-hosted Walk events.  My wonderful team – The Villas of Five Forks – raised over $4500 and we placed 5th in Williamsburg – right below all the LARGE corporate teams.  WE ROCK!!  My aim is HIGH for 2016.  I’m sure it will involve a new car!!  Get those $20’s out and ready!

I am looking for new items to auction at several events.  We need store gift cards (grocery stores would be nice) or any new store items.  Gift baskets are always a hit.  If you’re in the know that would be great for Team Villa. 

If you own a business and are willing to help sponsor Team Villa please let me hear from you.

 

If you see something you like click on the picture to see if it’s SOLD or to get the price.  Everything is reduced and 100% of all sales will go to my Villas team for this years walk.

https://www.facebook.com/Beach-Babes-Jewelry-117414971651930/photos

If you do not have Facebook I still have my old Beach Babes Jewelry Blog and you might see something special there.

http://beachbabesjewelry.blogspot.com

Just email if you see something you like and I’ll let you know if it’s available.

slbeach703@hotmail.com

for blog

Your love and support mean so much to me – Thank You!

 

 

Advertisements

HAPPY MAY DAY

mayday

 

Our life is about hitting the road, or soaring through the air. 

We are at the end of our month in Florida and it was wonderful though it will be nice to get home.  We’ll have a few weeks there then we are off again.

 

Art

I talked about music last month so now on to art.  Art projects can create a sense of accomplishment and purpose. They can provide the person with dementia — as well as caregivers — an opportunity for self-expression. These can be used for any stage of dementia.

When planning an art activity for someone with middle- to late-stage Alzheimer’s, keep these tips in mind:

  • Keep the project on an adult level.  Avoid anything that might be demeaning or seem child-like.  Never talk to people with dementia or an older adult with baby talk.  Respect their dignity.
  • Build conversation into the project.  Provide encouragement; discuss what the person is creating or reminiscence.
  • Help the person begin the activity.  If the person is painting, you may need to start the brush movement.  Most other projects should only require basic instruction and assistance.
  • Use safe materials.  Avoid toxic substances and sharp tools.
  • Allow plenty of time.

I have seen beautiful paintings and pottery from several people dementia/Alzheimer’s and they were amazing.

BB9

In 2002 I started a jewelry business, Beach Babe’s Jewelry, and what fun!!  I had a web site and great friends that hosted shows for me.  I was able to set up for festivals and wine events.  Three to four years ago I stopped it all.  I lost interest but I still have a lot of jewelry left over!   Maybe one day I’ll find something to do with it.  I think the jewelry would be great to buy as a donation – hint, hint!!!   My point is to encourage people to be artistically active.  I am now knitting and coloring and no, you do not want to see them.  Since I can not follow a knitting pattern I’m still into dishcloths but I am also making a blanket using knitted squares.  I love it – so relaxing.

 

Continuing with Elder Abuse from last month

The Victim:

  • Typical victims live with a family member and depend on relatives for daily care.
  • Others live alone and are unable to care for themselves or their affairs.
  • More women than men are abused.
  • Victims depend on the abuser for basic needs in the home or in a long term care facility.
  • Emotional problems between an elder, relative or caregiver may lead to abuse.
  • Victims are often over 80.
  • Victims may not be allowed to go outside nor have visitors.
  • Victims may have one or more disabilities, including mental impairment.

The Abuser

  • Are frequently family members who act in a care giving role.
  • Often do not understand the care needs of the elder.
  • May misuse drugs or alcohol.
  • May have a history of mental problems.
  • Emotional: Harming self-worth or emotional well-being, name calling and scaring
  • May depend upon the victim for money or shelter.
  • May have a history of spouse or child abuse.
  • May be unable to care for an aging person due to employment, poor health or advanced age.
  • May have stress problems other than the care giving role (e.g. financial difficulty, unemployment, marital problems).

 

BLOG moto may 2016

So Sharron, How are you doing?

We spent the month of April in Florida.  Loving the beach and weather!  I have to admit that going up the long ramp, down the stairs and then across the sand to get to our favorite beach spot is not pleasant for my leg but once I settle in the pain is relieved.  No cares or worries when you are looking and hearing the ocean.

I am (trying) to reading my Kindle on the beach and so enjoy it but by the next day I need to go back and review what I read the day before.  I have forgotten, but I don’t give up.

Our friends here in Florida have been so kind to us and made this vacation a lot more enjoyable.  Thank you, Hugh, Laura, Jean and Bob!!

thumbnail_IMG_1482

Florida foliage

I do believe that I may have decided to get my knee replacement in September. Pretty iffy? I was going to try to make it to November but why suffer any longer than I have to.  I do not look forward to the pain and rehab but I do look forward to finally having a pain-free knee.  I’m sure many of you can relate.

Next vacation is in a month to Arizona and New Mexico.  Yippy!!  Nothing like a week in Sedona to relax your mind and lift your spirits.

I am so proud of my three youngest Grandchildren.  YOU are awesome!!  Lexi graduates  May 7th from ODU,  Riley loves his karate and being on the honor roll, Emma, the only female on her baseball team is showing that a girl can play as well or better than the boys!  You go Emma and keep those hits coming!!  She is also on the honor roll but for some reason I think it’s called The Principle’s List.  Back in my day that was not a good thing!!

 

alzfacts

Updated 2016 Alzheimer’s Facts and Figures

This year’s report includes information about the financial cost to care contributors – those who are caregivers of someone with Alzheimer’s and/or contribute financially to their care.

Did you know:

  • On average, care contributors lose over $15,000 in annual income as a result of reducing or quitting work to meet the demands of care giving.
  • Nearly half of care contributors cut back on their own expenses (including food, transportation and medical care) to pay for dementia-related care of a family member or friend.
  • One in five care contributors cut back on their own doctor visits because of their care responsibilities.

As you prepare for this year’s Walk to End Alzheimer’s, I want to encourage you to share these facts and raise your voices on behalf of the more than 5 million Americans living with Alzheimer’s and their care contributors.

 

12687956_1179758452052856_5268891676463606844_n

THE WALK

The 2016 Williamsburg Walk to End Alzheimer’s®  is on Oct 22 at Matthew Whaley Elementary School. This will be my 3rd walk.

In 2015 our chapter (Southeastern Virginia) raised over $735,000 through 6 chapter-hosted Walk events.  My wonderful team – The Villas of Five Forks – raised over $4500 and we placed 5th in Williamsburg – right below all the LARGE corporate teams.  WE ROCK!!  My aim is HIGH for 2016.  I’m sure it will involve a new car!!  Get those $20’s out and ready!

I am looking for new items to auction at several events.  We need store gift cards (grocery stores would be nice) or any new store items.  Gift baskets are always a hit.  If you’re in the know that would be great for Team Villa.  If you own a business and are willing to help sponsor Team Villa please let me hear from you.

 

IMG_2222

As always THANK YOU for your love and support.