by Sharron Warren

Posts tagged ‘remembering’

WHERE DID MY BRAIN GO?

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I am taking a little summer break with shorter BLOGS until September then I (we) ramp it up for the Walk to End Alzheimer’s October.  Though I am always so tired, especially in the afternoons I hope my Villa’s Team and my hubby Tom will pitch in and help our team excel.  We rocked it last year!

Our vacation to Arizona and New Mexico was wonderful.  Tom limits my driving and so we had time for the pools and relaxing. Still it’s always nice to be home.  I am more tired, grumpy (HA!!) and emotional when I have to fly.  Watch out TSA!! (just kidding).  I want to see everything but it’s not possible.  I know – it’s not possible for many of us as we get older.  I’m trying to learn to live with it but my brain feels so foggy at times.  Where did the sharpness go??

 

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If you have a half an hour or so I’d recommend reading this article.

 Fraying at the edges

 https://outlook.live.com/owa/?path=/mail/AQMkADAwATY3ZmYAZS1iOGI5LWNlMWItMDACLTAwCgAuAAADJADrYjbZhEeu%2FZDrpqAUYwEA4XCyDHGDz0K1ebgDPcfC3wAAAEMZw6kAAAA%3D/attachmentlightbox

 

So Sharron, How are you doing?

 

  • On June 19th I rolled out of bed, took my shower and got dressed for church ON A SATURDAY………..then made a big production to Tom about being ready early – OOPPS

 

  • We are enjoying the pool and beach so from me to you – enjoy your Summer!  Heck, enjoy life!!

 

  • My Days are not as good you might think.  I should have been an actress.  My Mother used to call me “The Drama Queen”.  She also said be careful what you write as it may come back to haunt you.  Look at me now Mom……

 

  • I miss my sister.
  • This is HARD for care partners.

 

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The 2016 Williamsburg Walk to End Alzheimer’s® is on October 22 at Matthew Whaley Elementary School. This will be my 3rd walk.

In 2015 our chapter (Southeastern Virginia) raised over $735,000 through 6 chapter-hosted Walk events.  My wonderful team – The Villas of Five Forks – raised over $4500 and we placed 5th in Williamsburg – right below all the LARGE corporate teams.  WE ROCK!!

We will all meet again at Dan and Marianne Raymond’s house before the walk!!  Yippee – Donuts!!!

Alzheimer’s raffle tickets this year are for a Toyota RAV-4.  Only 20,000 will be printed giving everyone a better chance of winning.  This is a great way to donate and just maybe get something in return!!  WIN-WIN for all.  The tickets are $5 each but we LOVE to sell them in packs of 4 for $20.

I am still looking for items to raffle off at Brookdale.  They are so kind to let our team participate and I hate to waste that opportunity.  Baskets with goodies are always a great seller as are gift cards or homemade items.  Those with businesses have been great in donating services or gift cards but we need more.  We need your help!!  Calling out to Team Villa.  Please call or email to help out.  Any help is greatly appreciated.

slbeach703@hotmail.com/757-354-3113

Tom – warren450@hotmail.com/757-209-1977

**If you do not have a team you are more than welcome to join the Villa’s…….the bigger the better.  We can help you get registered.

 

As always, thank you for your insight Dear Cousin:

“Maintain relationships.  I imagine many want to hide because they are “not themselves”.  But, my first thought was that it isn’t the person in the gripe of Alzheimer’s that needs to maintain relationships.  It is the people who have been friends, etc. who need to suck it up, think less about themselves and stay in the relationship as it changes.  That is, to me, the part of our humanity that we need to practice.  Every thing changes and we adapt.” 

 

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THANK YOU MY SWEET LITTLE SUPPORTERS!!

 

 

 

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O HAPPY DAY

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“I see the ocean while crossing the bridge, my heart skips a beat. When was I here last to smell the clean air and amaze at the ocean?  It doesn’t matter as it still mesmerizes my mind….close my eyes and the sound is still there, I take a deep breath and breathe in the calm knowing that this is where I belong”. SW

 

My man Joe Friday – “Just the facts, ma’am.”

The popular social understanding is that Alzheimer’s is a disease that causes a loss of memory, but that turns out to be a cruel misrepresentation. The devastation is much more pervasive. As brain systems are progressively destroyed, behavioral and physical functioning become more and more impaired. Systems for memory, decision-making, judgement, sense of direction/location, speech, continence, walking and eating are all methodically destroyed until the disease progression ends in death.

The losses keep multiplying. Loss of partner, loss of shared decision-maker, loss of roles/functions in the household, loss of shared memories and humorous stories, loss of identity as the person no longer remembers themselves, his or her children or their spouse.

Sad but this could be your family. The average total cost per person with dementia five years before death was more than $287,000. That number compared to costs ranging from $173,000 to $197,000 among groups without any form of dementia. But, the average out-of-pocket spending for dementia patients was 81 percent higher than it was for those without dementia.

The “This can not happen to me” people had better start preparing. Think about helping with Alzheimer’s research by getting into a clinical trial or making a donation.

 

The Underused Specialist

A geriatrician is a physician already certified in internal or family medicine who has completed additional training in the care of older adults. In addition to providing clinical care, geriatricians are skilled in navigating the labyrinth of psychological and social problems that often arise in the aging population.

Geriatrics is one of the few medical specialties in the United States that the supply of Geriatricians contracting while demand increases, ranking at the bottom of the list of specialties that internal medicine residents choose to pursue.

Since the health care of older patients is covered mostly by Medicare low reimbursement rates make sustaining a geriatric practice difficult.

“Medicare disadvantages geriatricians at every turn, paying whatever is asked for medications and procedures, but a pittance for tough care-planning.

There is something wrong about our health care system – we all know it. I worked and lived that life for years with many physicians. Because of Medicare Geriatric Physicians are not practicing. Shafted by the Government, once again.

My Primary Care Physician is an internist and to me she is as knowledgeable as any Gerontologist. She treats me well, knows how to care and treat seniors (after all this IS Williamsburg!) has my medications all straightened out and the best part is that she is loving and compassionate.

 

So, Sharron……How are you doing?

  • My “bad leg” is not bouncing back as well as I thought it might. Being in pain is a lot to bear most of the time – then you add Alzheimer’s. Not a good combination.
  • I am looking for a way to increase my pleasure in living – I’m sure many are in my shoes. There are those who are happy and content no matter what life throws at them. Some of us have to dig and plan for things to make us content. I’m a digger!
  • Increase of this terrible slow mind robbing disease is just grating on my last nerve. I see myself stumbling and tumbling………..Some of you reading this will know what I mean. Either this is happening to you or you have a loved one with Alzheimer’s. Yes, I still hide it well.
  • A few more vacations are planned for this year – yeah!! I have many hours of driving and/or flying coming up. I’m hoping for days filled with sunshine and relaxation along with new adventures.
  • Life is good.

 

But…………………when things are bad….

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Monthly humor!

A RETIREE’S LAST TRIP TO COSTCO

Yesterday I was at Costco buying a large bag of Purina dog chow for my loyal pet, Bodie, the Wonder Dog, which weighs 191 lbs. I was in the check-out line when a woman behind me asked if I had a dog.

What did she think I had an elephant?

So because I’m retired and have little to do, on impulse I told her that no, I didn’t have a dog, I was starting the Purina Diet again. I added that I probably  shouldn’t, because I ended up in the hospital last time, but  that I’d lost 50 pounds  before I awakened in an intensive care ward with tubes coming out of most of my orifices and IVs in  both arms.

I told her that it was essentially a Perfect Diet and that the way that it works is, to load your jacket pockets with Purina Nuggets and simply eat one or two every time you feel hungry. The food is nutritionally complete so it works well and I was going to try it again. (I have to mention here that practically everyone in line was now enthralled with my story.)

Horrified, she asked if I ended up in intensive care, because the dog food poisoned me. I told her no, I stopped to Pee on a Fire Hydrant and a car hit me.

I thought the guy behind her was going to have a heart attack he was laughing so hard.

Costco won’t let me shop there anymore.

Better watch what you ask retired people. They have all the time in the World to think of crazy things to say.

 

 

 

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Oh YES, here it comes again!!!

The 2016 Williamsburg Walk to End Alzheimer’s® on Oct 22 at Matthew Whaley Elementary School. This will be my 3rd walk and I am so pleased with our Villa team.

In 2015 our chapter (Southeastern Virginia) raised over $735,000 through 6 chapter-hosted Walk events. My wonderful team – The Villas of Five Forks – raised over $4500 and we placed 5th in Williamsburg – right below all the LARGE corporate teams. WE ROCK!! My aim is HIGH for 2016. I’m sure it will involve a new car!!

I have a few suggestions for Villa fundraisers. Let me hear from you if you’re willing to help, most fun and wine of course!!  I’m ahead of myself as this will not be until September but I am excited.  I am also looking for new items to auction at several events at Brookneal (previously know as Chambrel).  I believe they were number one and were so awesome to let us participate at their fundraisers. We need store gift card (grocery stores are nice about that) or any store items.  If you’re in the know that would be great for Team Villa. If you own a business and can help us shout out to me.

I hope all of you will join me again.

 

 

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”Spring, spring is in the air.

I can feel it everywhere.”

March 20th – Halleluiah

Caregiver in the know

While I do not like repeating information this needs to be memorized. It is so important to anyone with memory issues.

  • Love me as you always did
  • Speak directly to me
  • BE with me
  • Let me be independent. Let me do as much as possible
  • Do not treat me like a burden
  • Keep me engage with family and
  • Make me feel safe – where I live now, equipment I need, falling
  • Celebrate the small things I can do.
  • Take care of YOURSELF – see friends, go out to lunch or dinner
  • Have someone you can talk to
  • Dignity is so important

 

 

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Thank you for your love and support

 

Getting Groceries

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The next few paragraphs are by Sharron’s husband, Tom. This is my observations on the changes.

Sharron loved to shop. Arts and Crafts, clothes, groceries, specialty foods and more. It did not matter what really; it was mostly about the looking around and the occasional fantastic find. She would come home and show off her acquisitions, or surprise me with something at dinner. Living in the good old USA, land of plenty was for her. She would sniff out the best deal, or find the recent elusive item mentioned on the food network. For grocery shopping she would get what we need by finding it, determining the best price, grab it then move on.

A little over two years ago I remember us in one of our busier grocery stores. There were people in every aisle. I was with her; we were looking at something simple like a can of beans. Store brand, Del Monte, Green Giant, etc. Some are at eye level, others at your feet. She looked at one, then another. She was hesitant, unsure what to put in the cart. What I know now is that she was confused. The distraction of people up and down the aisle, combined with remembering each price to determine best value and we have a situation. I said something like “the Green Giant is on sale for 68 cents.” She asked me why I am confusing her. The point here is that something as routine as getting a staple at the store can become a challenge.

So, WE have changed. At a store simple is better. Rushing is bad. Crowds are bad. We still comparison shop for nutrition (fiber and fat), but we do not confound the decision making by drilling down to save a nickel her, a dime there.

This year our times in the grocery store are shorter. On bad days we hit a point of sensory overload. Some days I say something wrong, or forget about the ‘no rushing’ strategy. Whatever the driver, she is ready to go home, to that quiet, comfortable, boring place, she loves and hates.